6 – 9 AUGUST 2019, SEC, GLASGOW
(ACADEMY PRE-CONFERENCE WORKSHOPS ON 5 AUGUST 2019)
THE WORLD CONGRESS OF THE
INTERNATIONAL ASSOCIATION FOR THE
SCIENTIFIC STUDY OF INTELLECTUAL
AND DEVELOPMENTAL DISABILITIES
Pre-Congress Academy Workshops
The IASSIDD Academy is conducting pre-conference workshops in conjunction with the World Congress at Glasgow.
Workshops will be conducted in half-day and full-day formats and usually include the presentation of theory (the evidence base) and opportunities for activities and / or discussion among participants. Importantly, the content will feature innovative ideas that have practical application, with participants gaining both knowledge and skills.
All Workshops will be held on Monday, 5 August 2019. Half Day Workshops will be held from 09:30 to 12:30 (AM session) and 13:30 to 16:30 (PM session). Full Day Workshops will be held from 09:30 to 16:30.
The cost to attend one Half Day Workshop in the AM or PM session is £50.00. To attend two Half Day Workshops, one in the AM and one in the PM session, the cost will be £90.00 and include light lunch.
The cost to attend a Full Day Workshop is £90.00 and is including light lunch.
List of Workshops
Full Day Workshops
09:30 – 16:30
Co-operative Research – Exchanging knowledge with self-advocates and their allies
Presenters: Alice Schippers and Paula Sterkenburg
Through the experiences of inclusive research teams (with people with and without ID/DD) we aim to focus this workshop on the most important issues in conducting inclusive research with a mixed group of people. The workshop aims at knowledge transfer and exchange with all stakeholders involved (mix of researchers, co-researchers, persons with disabilities and others who are interested) in inclusive research and the application in future research and research agendas
Demonstration of the Parenting Interaction Model (with the Parenting SIRG)
Presenters: Maurice Feldman and Marjorie Aunos
It has been over 15 years that the Parenting Interaction Model (Feldman, 2002) was first published describing impediments and supports to successful parenting and leading the way to supporting researchers and clinicians to a formal model of parenting assessment variables and processes for parents with ID
Drs Feldman and Aunos would like to facilitate an evidence-informed discussion (roundtable/workshop format) about updating parenting capacity models with elements of different variables (impediments and supports) that have since been shown to be associated with parenting or been associated with key variables as illustrated in the parenting interactional model.
Researchers and practitioners from several countries who have conducted research on some or all of the model variables will be invited to participate in this workshop. Their contributions have been essential to the growing of the field of parenting by persons with IDD and we are hoping to integrate their conclusions into to a revised, updated model that will move the field forward.
Conversation Analysis: a tool to improve engagement of people with intellectual disabilities and prevent Disabling Communication Patterns
Presenters: Deborah Chinn, Chris Walton and Thomas Doukas
A great deal of research on communication with people with intellectual disabilities focuses on their perceived communicative deficits. Alternatively, from time to time people with intellectual disabilities are asked to comment on how others (for instance medical staff or care workers) communicate with them. There are concerns voiced by people with intellectual disabilities (‘doctors use words we don’t understand’) and recommendations that are often vague and hard to implement (‘check the understanding of your patients with intellectual disabilities’).
Conversation analysis (CA) takes a very different approach to understanding communication involving people with intellectual disabilities. CA research with people with intellectual disability show that even people with considerable impairments use linguistic resources skillfully. The workshop will cover Introduction to theory, method and existing research (am) and Application of CA to data analysis and development of interventions (pm).
Demonstration of Adapted Dialectical Behaviour Therapy for Individuals with Autism Spectrum Disorder who display challenging and/or offending behaviours
Presenters: Joseph Sakdalan and Sabine Visser
There is a paucity of therapeutic strategies that can be utilised with individuals with autism spectrum disorder (ASD) who have challenging or offending behaviours. The use of Dialectical Behaviour Therapy (DBT) which is strength-based and habilitative in its approach, has expanded to populations with personality disorders, substance misuse, mental health issues and offending issues. This workshop will focus on providing the participants knowledge and skills on the use of DBT coping skills with their work with clients with ASD who have difficulties with emotion regulation, distress tolerance, cognitive rigidity and sensory issues.
Half Day Workshops – AM Session
09:30 – 12:30
Assessment of mental capacity in adults with intellectual disabilities: Utility of a web based Mental Capacity Assessment tool for staff
Presenter: Karen Dodd
Assessing mental capacity is a key issue for staff working with people with intellectual disabilities. This workshop will:
– Describe why we developed the web based capacity assessment tool
– Show people how to use it in practice
– Provide data on its use and the results of pre and post use questionnaires
– Consider implications for practice
Inclusive education: Practical implications from new research using the example of learners with Down syndrome
Presenters: Rhonda Faragher, Elena Gill and Elisabetta Monari Martinez
Mathematics is a fascinating field of human endeavour that underpins a numerate adulthood and enhances awareness of the world. Until recently, most learners with Down syndrome were deprived of the opportunity to learn mathematics due to low expectations, inadequate content and inappropriate teaching methods.
Fortunately, new research is opening the doors to the study of mathematics for learners with Down syndrome. In this workshop, participants will hear of the latest research and discuss the implications for classroom practice.
Demonstration of a programme for engaging Youth and Young Adults with IDD and their Families in Weight Loss Programming
Presenters: Carol Curtin, Gretchen A Dittrich and Richard Fleming
This workshop will present an overview of Health U, an engaging, successful weight loss program for youth/young adults with IDD that was developed and tested at UMass Medical School in the US. Health U consists of interactive, hands-on, social activities that teach essential nutrition and physical activity concepts in a manner that meets the cognitive, communication, and literacy needs of individuals with IDD. Parents are taught to employ supportive behavioral techniques to encourage the adoption of healthy lifestyle habits in their offspring. The program also includes an individualized, visually-based “Healthy Eating Plan” that assists participants to consume a healthy diet and promote weight loss. This interactive workshop will provide participants with information on weight management in youth with IDD as well as provide materials, tools, and strategies to successfully engage this population and their families in weight loss programming in community, school, and clinical settings.
Half Day Workshops – PM Session
13:30 – 16:30
End of Life and people with intellectual disabilities: how to manage the discussion
Presenters: Roger Stancliffe and Michele Wiese
People with intellectual disability have the right to know about dying and death. This workshop will provide a detailed introduction to teaching people with ID about multiple end-of-life issues. We will (a) demonstrate how to use our recent, free online resource Talking End of Life…with people with intellectual disability (TEL) https://www.caresearch.com.au/TEL/, (b) introduce participants to other end-of-life training resources, and (c) discuss how such resources could be used by disability services, and families. TEL includes numerous short videos featuring real people with ID and disability support staff. We will use the videos to illustrate various teaching methods and end-of-life issues.
We will also provide delegates with a detailed introduction to three psychometrically-sound end-of-life assessment tools designed specifically for people with ID, respectively dealing with (a) understanding the concept of death, (b) end-of-life planning, and (c) fear of death.
How to support people with intellectual disability who are frail: the development, recommendations and implementation of the International Frailty Consensus Statement
Presenters: Hélène Ouellette-Kuntz, Lynn Martin, Brendan Dee and Eimear McGlinchey
The authors of the International Consensus Statement on How Best to Support Adults with Intellectual and Developmental Disabilities (IDD) who are Frail will review the two principles and seven recommended actions which make up the Statement with a focus on practical applications. Various resources and tools (e.g., infographics, videos) for implementing the recommendations will be presented in an interactive forum. Participants will have an opportunity to comment on the applicability of the tools to their context and to share their own approaches to supporting adults with IDD who are frail.
The New Eugenics – Concerns, Arguments and Questions
Presenter: Hans Reinders
There is increasing concern in parts of the disability community that there is a quiet rise of a ‘new eugenics’. To date there has been limited debate or discussion of this issue within the academic and professional community concerned with IDD. This workshop seeks to begin a dialogue on these issues. Specifically it seeks to:
– Provide an overview of factual developments in ending the lives of human beings affected by IDD
– Provide insight in different approaches to QoL
– Discuss arguments regarding three key themes: Neonatal euthanasia;, genetic screening and selective termination; Physician Assisted Suicide
– Discuss whether these trends represent a new eugenics